Consulting Bioethicist for “b-IDS: A Proposal for a Blockchain-enabled Indigenous Data Sovereignty Framework to Enable Management of Tribal Genomic Data.”
2023–
Funded by the Robert Wood Johnson Foundation’s Pioneering Ideas: Exploring the Future to Build a Culture of Health Grant
PD: Keolu Fox
Co-PD: Tim K. Mackey
Consulting Bioethicist for Moroni Benally’s Policy Group: Developing a White Paper on the Future of Indigenous Genomics
2023–
Funded by the Native Biodata Consortium, this project will propose policy strategies bearing on Indigenous genomic data that are rooted in Indigenous episteme and sovereignty.
Consulting Bioethicist on NIH funded project, “Data for Indigenous Implementations, Interventions, and Innovations (D4I).”
2022–
The Native Biodata Consortium, in partnership with multiple academic institutions, aims to create a tribal data repository for the RADx Initiative to safeguard data collected from tribal nations and advance the data ethics of tribal engagement.
MPIs: Joseph Yracheta, Krystal Tsosie, Matthew Anderson, and Katrina Claw
Consulting Bioethicist for the Development of an Online Dynamic Consent User Interface for the Native BioData Consortium’s Biobank.
2022
I worked with software developers from GenUI and NBDC staff to guide the design of an online user interface for biobank users.
Consulting Bioethicist for “Genetic Risk Assessment Vignette Study among US Indigenous People.”
2021–2022
I helped design an online research study into US Indigenous peoples’ perspectives on genetic testing conducted by The Native Biodata Consortium.
PI: Krystal Tsosie
